The Shoes

I am wearing a pair of shoes. They are ugly shoes. Uncomfortable shoes. I hate my shoes. Each day I wear them, and each day I wish I had another pair. Some days my shoes hurt so bad that I do not think I can take another step. Yet, I continue to wear them. I get funny looks wearing these shoes. They are looks of sympathy. I can tell in others eyes that they are glad they are my shoes and not theirs. They never talk about my shoes. To learn how awful my shoes are might make them uncomfortable. To truly understand these shoes you must walk in them. But, once you put them on, you can never take them off. I now realize that I am not the only one who wears these shoes. There are many pairs in this world. Some women are like me and ache daily as they try and walk in them. Some have learned how to walk in them so they don't hurt quite as much. Some have worn the shoes so long that days will go by before they think about how much they hurt. No woman deserves to wear these shoes. Yet, because of these shoes I am a stronger woman. These shoes have given me the strength to face anything. They have made me who I am. I will forever walk in the shoes of a woman who has lost a child.

Christmas And The Future...

We officially survived the holiday season. I actually think the preparation and anticipation was much worse than Christmas itself. I think not knowing what to expect was really the hard part. After Santa came on Christmas Eve, Nathan and I decided to watch the video of the last Christmas we had with both of our boys here on earth. It has been so long since I have heard Evan's voice! That was what really got to me. He was talking, laughing, and most of all, he was so healthy and alive. I just wanted to reach into the TV and grab him! He was just so loving and so sweet! He was more worried about everyone else opening their presents than his own. Evan was always so grateful. It has been a little over 19 months and I wonder what he would be like now. We miss him so much...

Christmas Day was spent with loving people surrounding us. My anxiety level was so high prior to that day that I thought for sure it was going to be terrible. Of course it was not easy, but we just focused on Noah and enjoyed every moment with him! He was so excited all day long. While it was great to see him thrive in the Christmas spirit, it was also sad to watch him open presents and enjoy Christmas without Evan by his side. I realized that Christmas Day is not any different than any other day really. Each day without Evan is always going to be hard, some just worse than others.

The past year has been filled with pain and hurt in more ways than one. My hopes for 2010 are quite high. I am determined that we are going to learn to truly enjoy life again. We have a a new baby due within days, and Noah who is full of life and holds us together. We also have the memories of Evan that will forever live in our hearts. For that, I am truly grateful!

One of my goals for 2010 is to learn to put my trust in God. I really struggle with this. While God has truly been a strength in our lives, I have such a hard time just giving all my worries to him. I still wake up and check on Noah every hour throughout the night. The thought of him dying in his sleep is constant, and with baby Chase coming soon, I have to learn to let my children sleep at night and trust that God will keep them safe.

Psalm 55:22 (NIV) Cast your cares on the lord and he will sustain you; He will never let the righteous fall.

Another one of my goals to to focus on the blessings that surround us! I want to thrive in happiness and learn to view life in a more positive manner. With the tragedy that we have suffered it is so easy to sulk into darkness and despair, all of which I have done many times. While I know there will be many days of sadness and crying, I really want to try hard to learn to be truly happy again. My children deserve this!

Please keep us in your prayers as we are about to have our baby!

Christmas Memories

It's Christmas Eve and our house is filled with the magic of Christmas and the emptiness in our hearts all at the same time. This is actually the first BIG year that Noah is experiencing the magic of Christmas. All day he has been anticipating Santa's arrival. We made some special cookies just for Santa. It is so awesome to see Noah get in the spirit and Nate and I have been trying our hardest to make special memories with him. Throughout the day I kept thinking that I should have both of my boys bouncing off the walls from all the excitement. It just isn't right that Evan is not here with us and the pain just lingers within.

While Noah is loving every bit of Christmas, Evan is never far from his little mind. Last night Noah crawled into the front window and looked out. He said to me, "Mommy do you know what my wish is?" I asked him to elaborate. He looked up into the sky and said, "Mommy, my wish is for Evan to come down from Heaven." He then asked me, "Do you think Santa Clause can bring him for me?" My heart just melted. It is times like these when I feel so bad for Noah not having his big brother by his side. There will forever be a void in our hearts. This is when I remind myself that Evan is spending Christmas in Heaven and there is no better place!

Have a wonderful Christmas and remember to focus on Jesus Christ for he is the true meaning of Christmas. Give your little ones lots of hugs and kisses! Children are the greatest gift and be thankful for each moment you have with them!

Our first Christmas with Evan!

Our last Christmas with Evan...

We love you sweetheart!

Feeling Beat Down

I am beginning to feel completely and totally beat down. The past 18 months have been such a challenge and it seems like everything goes wrong. I am currently 35 weeks pregnant. Yesterday Nate and I went for an ultrasound to measure the baby. The doctor came in and told us that his little arms and legs were measuring smaller. What does this mean? My doctor said that it means that there is a slight possibility that our baby has Down Syndrome. The tech also saw a "fuzzy" spot on the baby's spine. My doctor then sent us to a perinatologist for another ultrasound and a better view of the baby. They viewed the spine and said that it was normal. HUGE blessing! They then confirmed the first measurements of the arms and legs, but also stated that this was the only marker they saw. There were no other indicators of Downs. The chance are very slim, but nonetheless there is still a chance. We had the choice to have an amnio done, but opted out of it due to the risk of early delivery and having a premature baby.

Of course this sent us into a whirlwind of emotions....again. It is starting to seem that we have this dark cloud hanging over us. I am trying so hard to stay positive and think the best! The genetic counselor we met with stated the there is also a good chance he just may be short. The fact that everyone in my family and Nate's family is very short gives me a great deal of hope.

I AM DESPARATLEY ASKING FOR PRAYERS!!! Please just pray that our baby is a normal, healthy baby and that God gives us the strength to handle whatever comes our way!

Happy Holidays? Not Really...

Well, this post is probably going to be somewhat depressing to read due to my own self-pity! I have to admit that as much as I am trying to be positive about the holidays, they are becoming more and more difficult by the day. Nathan and I have been working on preparing for the holidays for quite some time. This past weekend was pure torture as we tried to put up Christmas decorations around the house. Since I am eight months pregnant, I thought I would get away with putting up a little tree and just a few decorations. Noah had bigger plans! He wanted a big Christmas tree and a house full of decor! So Nate and I thought it was only appropriate to indulge his desires. We decided to go all out, or at least on the inside of the house.

Saturday was the day we decided to do this. We discovered that we no longer had a big Christmas tree. We had forgotten that it had to be thrown away two years ago due to bad lights. So off we went to find a tree. Stores were busy, people were pushy, and this very pregnant mommy was trying to waddle around in all of it! We finally found a tree but they were sold out of lights. That was another adventure! After three hours and about 10 temper tantrums and many meltdowns later, we finally came home with a tree and lights! When I say temper tantrums and meltdowns, I must mention that Noah was great through all of this, so you can imagine who was having a hard time. Yes, me! I managed to cry over just about everything!

How are we going to have Christmas without Evan? This is just not fair! Last year we took off to Mexico, so we dodged Christmas and most of the festivities. This year is proving to be much harder. Pulling all of Evan's little Christmas things out of containers was absolute torture. His little ornaments are hanging on the tree and his little stocking is hanging on the mantle. Looking around my house one would think he is still here. It is just so sad. By Sunday, all I could do was sit in Evan's room and cry! I just want the holidays to be over.

The worst part of the weekend was having to decorate his little headstone for Christmas. While I wanted to make it look great, this is something that parent should never have to do. I also called the cemetery to order a grave blanket. The lady on the other end of the phone asked me who it was for. When I told her she replied, "So you need a child size?" This was another huge reality check. I actually had to order my child a grave blanket! This just sent me into a frenzy of tears! I don't get to buy all the fun toys that Evan would have wanted. I don't get to hear his special little Christmas wishes and watch the magic of Christmas unfold through his eyes. Instead I get to sit in my own sorrow and wonder what would have been. This seems to be my life story these days!


I know that I have to pull myself out of this awful state of sadness that I am in, at least for Noah's sake. I am probably doomed with pregnancy hormones vs. grief and loss. I keep telling myself that it has to get better. Is it always going to be this difficult?

By Sunday evening, I just sat a prayed for God to keep us strong...

The Struggle To Understand

With losing a child, some people have certain expectations as to how we should act or certain decisions we should or shouldn't make. Evan's death left us devastated and hurt not knowing what each day would bring. Each day brings a different struggle as well as a new challenge. I never know what the next day will be like or how I will feel.

It has been 17 1/2 months since Evan left us. People assume that the more time that goes by or once you hit the year mark, things will get better. That is is merely an assumption. I get so tired of people saying that we should "learn" to do certain things or that we are "going to have to move on." No one has the right to say anything to us unless they have walked in our shoes for a day.

Each day I live with the fact that I walked into Evan's room and found him dead in his bed. For the first eight months, I relived this moment every hour of every day, almost as if I could change it in my mind. I would have panic attacks 10-15 times a day. I later found out this was considered PTSD. I live with the fact that Evan had to be taken away for an autopsy. Nathan and I had to sit in a funeral home and pick out a casket for our precious 6-year old little boy. The word casket should never be used in the same sentence as a child's name. We had to stand next to our child in a casket for 8 hours while everyone paid their respects. We had to walk behind six men carrying our little boy in his little white casket to be taken away forever. I never thought a cemetery would become such a big part of our life. I never thought I would have to pick out a headstone for my little boy.

Our search for answers has led us to make decisions we never even imagined. We had to send Evan's blood and tissue all over the country in hopes of someone helping us. Then after many long months and little answers, I had to open a package containing the last of Evan's blood and store it in a freezer in our basement.

I get to spend the rest of my life without Evan. I also get to watch all the other kids close to his age grow up and do the things that Evan should be doing right along with them. Each morning I wake up and this nightmare has not gone away. Every picture I see of Evan reminds me of what we don't have and how unfair this is. I cry every day! This is my own self-pity. The thoughts that I have on a daily basis are enough to make anyone crazy. I was driving home the other night in the cold rain. I passed the cemetery where Evan is buried and all I could think was there was my precious little boy in the dark, cold, rain, all by himself. I don't like this new life we are living!

Through all of this, Nathan and I have learned what it means to show respect and understanding towards each other. I may not always understand why he does certain things and he may not always understand what I do, but we always respect the other's decisions. People have different ways of dealing with certain situations. Some people seem to have their own opinions as to how we should do certain things.

I am incredibly saddened by how selfish some people can truly be because we don't do what they want us to. Until you have gone through what we have and walked a day in our shoes, I don't think anyone has the right to judge us or our decisions!

A Reason To Shop At Kohls!

Okay, so if you ever need a reason to shop at Kohls, I will give you a good one. Back in August or maybe even September, one of the girls on "Team Evan" went into the Edwardsville Kohls soliciting a donation for the benefit. They were very receptive to helping! The manager stated that she had to contact the cooperate office to see what their store could do. Kohls ended up donating $500 to SUDC in honor of Evan! That is just awesome!! I expected a small donation of maybe $50 or so, but $500 just made our day! I am so excited! That brings our grand total up to $13, 500 raised and sent to SUDC on behalf of Evan! In addition to their donation, Kohls offered to send a few employees to help at the benefit. We graciously told them that we had enough people to help. Kohls then sent a group of employees to play trivia. So, when your doing your holiday shopping, remember to shop at Kohls. When they say "Kohls Care For Kids", they really mean that!!!